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  • Home
  • SMA
    • About SMA
    • Newly diagnosed
  • Community
    • About Us
    • Membership
    • Fundraising
    • Resources
  • Events
    • Upcoming events
    • SMA Camp
  • Care
    • Treatments
  • Contact Us
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  • Donate
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Monthly Archives: April 2020

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World Muscle Society position and advice

Covid-19 and SMA, Member UpdateBy ebessoApril 14, 2020

Covid-19 and people with neuromuscular disorders:   World Muscle Society position and advice – Update 02-04-2020 Amendments to the original document text 3. What consequences does the risk of Covid-19…

SMA Data Update

Member Update, Research NewsBy ebessoApril 6, 2020

 SMA Data update with Biogen.   Dear members of the SMA community, Following your request for updates regarding new SMA data in adult patients, we wanted to share that a…

video conference #1

Covid-19 and SMABy ebessoApril 2, 2020

Here is the first video conference in a series of videos to be posted Video conference #1 https://youtu.be/coV2O-7UONY

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