MONTHLY QUESTIONS – Cure SMA Canada https://curesma.ca “Help for Today, Hope for Tomorrow” Fri, 14 Jun 2019 13:01:36 +0000 en-US hourly 1 https://wordpress.org/?v=6.9 https://curesma.ca/wp-content/uploads/2017/08/cropped-cropped-sma-site-icon-32x32.png MONTHLY QUESTIONS – Cure SMA Canada https://curesma.ca 32 32 DAY 21 https://curesma.ca/2019/02/19/day-21/ Tue, 19 Feb 2019 06:18:59 +0000 https://curesma.ca/?p=997

How does it feel to be able to access a life saving treatment and know others aren’t able to?

]]> DAY 20 https://curesma.ca/2019/02/18/day-20/ Mon, 18 Feb 2019 06:17:06 +0000 https://curesma.ca/?p=995

How has the experience of loss of function affected your family?

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]]> DAY 19 https://curesma.ca/2019/02/17/day-19/ Sun, 17 Feb 2019 06:14:42 +0000 https://curesma.ca/?p=993

If you were to have one ability back that you have lost, what would it be?

]]> DAY 18 https://curesma.ca/2019/02/16/day-18/ Sat, 16 Feb 2019 06:12:55 +0000 https://curesma.ca/?p=991

Do you feel older patients should have the same opportunities as younger?

]]> DAY 17 https://curesma.ca/2019/02/15/day-17/ Fri, 15 Feb 2019 06:10:16 +0000 https://curesma.ca/?p=989

What changes/ improvements would you hope to see by accessing Spinraza?

]]> DAY 16 https://curesma.ca/2019/02/14/day-16/ Thu, 14 Feb 2019 06:07:20 +0000 https://curesma.ca/?p=987

How would you feel if the gov’t decides to NOT approve reimbursement for your type of SMA?

]]> DAY 15 https://curesma.ca/2019/02/13/day-15/ Wed, 13 Feb 2019 06:04:17 +0000 https://curesma.ca/?p=985

How has the fight for treatment impacted the Cure SMA Canada organization?

]]> DAY 14 https://curesma.ca/2019/02/12/day-14/ Tue, 12 Feb 2019 06:02:10 +0000 https://curesma.ca/?p=983

Are you disappointed in our Canadian Government?

]]> DAY 13 https://curesma.ca/2019/02/11/day-13/ Mon, 11 Feb 2019 06:59:48 +0000 https://curesma.ca/?p=981

What is your most significant physical loss and how has that loss impacted your life?

]]> DAY 12 https://curesma.ca/2019/02/10/day-12/ Sun, 10 Feb 2019 14:59:26 +0000 https://curesma.ca/?p=979

Is it fair for the gov’t to only use clinical trial data and ignore real life Spinraza data?

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