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  • Home
  • SMA
    • About SMA
    • Newly diagnosed
  • Community
    • About Us
    • Membership
    • Fundraising
    • Resources
  • Events
    • Upcoming events
    • SMA Camp
  • Care
    • Treatments
  • Contact Us
  • Donate A Car
  • Donate
  • Français

Monthly Archives: July 2018

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Roche Community Update

Member Update, Research NewsBy ebessoJuly 25, 2018

5 July 2018 Dear SMA community members, As requested, we are very pleased to share with you an update of the RG7916 programme, which has reached a number of milestones.…

Wondering how to engage? Find out below!

Member UpdateBy ebessoJuly 25, 2018

Things are happening!! Join in! Participate! Support Cure SMA Canada as we work hard to support your family! Spinraza update Winnipeg Health Minister Meeting – SMA Demonstration Roche update Rebecca…

Susi’s story: One mother’s fight for access to lifesaving treatment

Member UpdateBy ebessoJuly 5, 2018

Susi’s story: One mother’s fight for access to lifesaving treatment In March, a group of families descended on Ottawa intent on making their voices heard at Parliament Hill. They were…

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