Fundraiser – Cure SMA Canada

Tangerine top 20 finalists

ebesso — Sun, 09 Jul 2017 13:37:30 +0000

Congratulations – Cure SMA Canada has been selected as one of the #Tangerine20 contest’s Top 20 finalists. Cure SMA Canada’s mission touched our hearts, and deeply resonated with us and our goal to give back. Your organization rose to the top of nearly 400 inspiring entries for the #Tangerine20 contest! It was an extremely tough decision to select the Top 20 from the many deserving causes that were submitted and we’re so pleased to have your cause be a front-runner for the next phase of this contest.

Starting today, the full #Tangerine20 Top 20 list has been announced. We encourage you to share the news with your organization and community – by using the hashtag #Tangerine20 on social media, through your organization’s newsletter, website, email lists or just old fashioned word-of-mouth – to help your cause get the votes it needs to win one of the #Tangerine20 prizes. As we know, every little bit counts!

Canadians can vote every day for one of the Top 20 finalists at tangerine.ca/tangerine20.

Additionally, someone will be in touch with you soon to get some more information.

Thank you again for participating and helping us celebrate our 20th anniversary!

Sincerely,

Cayley Kochel
416 497 5157 x 4013
ckochel@tangerine.ca
3389 Steeles Ave E., Toronto ON, M2H 0A1

DONATE A CAR

ebesso — Sat, 13 May 2017 12:26:36 +0000

Donate A Car Canada accepts vehicle donations for “Cure SMA Canada”. To donate a car, truck, RV, boat, motorcycle or other vehicle to the Cure SMA Canada ”, go to www.donatecar.ca. We provide free towing in many areas across Canada, or you can drop off your vehicle to maximize your donation. When you donate your car at www.donatecar.ca, it will either be recycled or sold at auction depending on its condition, age and location. Donate A Car Canada will look after everything to make your donation easy for you to support the Families of Cure SMA Canada.

DONATE NOW at www.donatecar.ca and Families of Cure SMA Canada will send you a tax receipt after your car donation is complete!

TYPE: ONGOING FUNDRAISER

Callen’s first birthday toy Drive

ebesso — Sat, 13 May 2017 12:08:48 +0000

CALLEN'S FIRST BIRTHDAY TOY DRIVE

FROM JUNE 1ST TILL JUNE 14THThis is an online event and u can participate now until Callen’s birthday when we will close orders. Please join event, you don’t have to go anywhere!

Callen’s First Birthday is just around the corner. This marks another milestone and day that should be filled with excitement that we will miss with our beautiful boy. Please join us in celebrating Callen’s first birthday by participating in his toy drive. All toys and donations will be sent to the Families of Cure SMA Canada to be given to newly diagnosed families. A newly diagnosed family and their baby is likely in and out of hospital and we feel it’s very important to allow these families to play and have fun and enjoy being new parents to their bundle of joy and try and take some of the focus off the diagnosis and being a patient with a critical illness. Toys on this registry have been specifically chosen to be the most beneficial toys to a baby with SMA.

OUR FACEBOOK PAGE :

TOY DRIVE REGISTRY :

Expert Hearing Solutions in support of SMA Research

ebesso — Wed, 03 May 2017 13:04:29 +0000

You may remember Nicole Kutchyera, Audiologist at our north office. Nicole left for maternity leave in July, 2016 and welcomed baby Cohen in early August. At just 8 weeks old, Cohen was diagnosed with Spinal Muscular Atrophy type 1.

SMA is a genetic disease in which nerve cells of the spinal cord fail to produce a protein essential to their survival. Without this protein, nerve cells die off and muscle wastes away. SMA has been compared to an infantile onset Lou Gehrig’s Disease (ALS).

There are 4 types of SMA, type 1 being most severe. If untreated, 50% of type 1 infants will pass away before their 1st birthday, and 90% before their 2nd.

SMA is autosomal recessive and affects approximately 1 in 10,000 live births. 1 in 40 Canadians unknowingly carry the genetic mutation that causes SMA.

But we have hope!

Until very recently there was no treatment for SMA. Cohen is very lucky to be one of the first babies to receive Spinraza, a gene-modifying drug that tricks motor neurons into producing some of the missing protein.

Why are we fundraising?

Despite having a new treatment, there is still no cure for SMA. Families of SMA Canada is a parent-led organization that funds research to expand our knowledge of this debilitating disease and, eventually, develop a cure.

Any donations given will go directly to Families of SMA Canada to fund life-saving research.

Thank you for your support!

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