NOT recommending the listing of Spinraza for any type of SMA in Quebec
Dear SMA Community, We have had a response today from INESS which is the Insitut national d’excellence en sant’ et en services sociaux. They have stated that they are NOT…
2017 Canadian sponsors
Sponsor announcement
Cure SMA Canada Conference – Registration still available!!
Hyatt Regency – King St. W, Toronto, Ontario November 5, 2017 Held in conjunction with the CORD (Canadian Organization for Rare Diseases) conference which will be November 6-7, 2017 at…
next steps following Health Canada’s approval of SPINRAZA™ (nusinersen).
Dear members of the SMA community, In response to your request for information, we would like to provide you with an update on Biogen’s SMA360 Canada Patient Support Program and…
update to approuval process
Dear SMA Community, We hope you are enjoying your summer. We know many of you are anxious about the approval process for Spinraza in Canada and therefore would like to…
Spinraza : Next steps
Spinraza next steps. The following diagram outlines costs and benefits.
We would like to share a very special donation from a very special family.
We would like to share a very special donation from a very special family. Chantelle and Damien Commisso recently held a toy drive in memory of their precious baby boy…
We have completed our submission in to CADTH!
We have completed our submission in to CADTH! Thanks to everyone’s support and heartfelt responses, we feel we have a very strong message to the drug review committee expressing the…
Cure SMA Canada conference update
This year Cure SMA Canada will be having a conference in conjunction with CORD ( Canadian Organization for Rare Diseases What to expect?Speakers from various drug companies, health care professionals,…