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  • Home
  • SMA
    • About SMA
    • Newly diagnosed
  • Community
    • About Us
    • Membership
    • Fundraising
    • Resources
  • Events
    • Upcoming events
    • SMA Camp
  • Care
    • Treatments
  • Contact Us
  • Donate A Car
  • Donate
  • Français

Monthly Archives: August 2017

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  3. August

next steps following Health Canada’s approval of SPINRAZA™ (nusinersen).

Canadian Nusinersen Review Process Updates, Research NewsBy ebessoAugust 18, 2017Leave a comment

Dear members of the SMA community, In response to your request for information, we would like to provide you with an update on Biogen’s SMA360 Canada Patient Support Program and…

update to approuval process

Member UpdateBy ebessoAugust 18, 2017Leave a comment

Dear SMA Community, We hope you are enjoying your summer. We know many of you are anxious about the approval process for Spinraza in Canada and therefore would like to…

Spinraza : Next steps

Canadian Nusinersen Review Process UpdatesBy ebessoAugust 11, 2017Leave a comment

Spinraza next steps. The following diagram outlines costs and benefits.

We would like to share a very special donation from a very special family.

Member UpdateBy ebessoAugust 10, 2017Leave a comment

We would like to share a very special donation from a very special family. Chantelle and Damien Commisso recently held a toy drive in memory of their precious baby boy…

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