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  • Home
  • SMA
    • About SMA
    • Newly diagnosed
  • Community
    • About Us
    • Membership
    • Fundraising
    • Resources
  • Events
    • Upcoming events
    • SMA Camp
  • Care
    • Treatments
  • Contact Us
  • Donate A Car
  • Donate
  • Français

Monthly Archives: July 2017

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  3. July

We have completed our submission in to CADTH!

Member Update, Research NewsBy ebessoJuly 24, 2017Leave a comment

We have completed our submission in to CADTH! Thanks to everyone’s support and heartfelt responses, we feel we have a very strong message to the drug review committee expressing the…

Cure SMA Canada conference update

Member UpdateBy ebessoJuly 13, 2017Leave a comment

This year Cure SMA Canada will be having a conference in conjunction with CORD ( Canadian Organization for Rare Diseases What to expect?Speakers from various drug companies, health care professionals,…

Tangerine top 20 finalists

Fundraiser, Member UpdateBy ebessoJuly 9, 2017Leave a comment

Congratulations – Cure SMA Canada has been selected as one of the #Tangerine20 contest’s Top 20 finalists. Cure SMA Canada’s mission touched our hearts, and deeply resonated with us and…

Cure SMA conference update

Member UpdateBy ebessoJuly 3, 2017Leave a comment

Here is what Cure SMA Canada has been working on at the conference:   – Met with all the key research groups/drug companies receiving in depth and up to the…

Approval of nusinersen/spinraza from Health Canada

Research NewsBy ebessoJuly 2, 2017Leave a comment

Cure SMA Canada is very happy to announce the approval of nusinersen/spinraza from Health Canada. We are very excited to confirm the approval for treatment for all types of SMA…

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