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  • Home
  • SMA
    • About SMA
    • Newly diagnosed
  • Community
    • About Us
    • Membership
    • Fundraising
    • Resources
  • Events
    • Upcoming events
    • SMA Camp
  • Care
    • Treatments
  • Contact Us
  • Donate A Car
  • Donate
  • Français

Yearly Archives: 2018

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  2. 2018

Canadian drug approuval and funding process

Research NewsBy ebessoJanuary 11, 2018Leave a comment

Clinical Trials Clinical trials test drug candidates for safety and effectiveness.   Clinical Trial Basics A clinical trial, also called an interventional study, tests new drugs and treatments. It can…

Latest advancements

Member Update, Research NewsBy ebessoJanuary 11, 2018Leave a comment

The Cure SMA drug pipeline is one of the primary ways we evaluate the success of our research program. The pipeline identifies the major drug programs in development, and tracks…

Community update January 4, 2018

Member UpdateBy ebessoJanuary 8, 2018Leave a comment

Dear Canadian SMA Community and its supporters, Before the Christmas holidays, our community received a shocking response from CDEC (Canadian Drug Expert Committee) of only recommending reimbursement of a small…

Biogen Community Update – December 22, 2017

Member Update, UncategorizedBy ebessoJanuary 8, 2018Leave a comment

Biogen Community Update – December 22, 2017 Dear members of the SMA community, In response to your request for information, we would like to provide you with an update on…

BIOGEN RESPONDS TO COVERAGE RECOMMENDATION BY THE CANADIAN DRUG EXPERT COMMITTEE (CDEC) FOR SPINRAZA, THE ONLY TREATMENT APPROVED FOR TREATMENT OF 5Q SPINAL MUSCULAR ATROPHY (SMA)

Research NewsBy ebessoJanuary 8, 2018Leave a comment

BIOGEN RESPONDS TO COVERAGE RECOMMENDATION BY THE CANADIAN DRUG EXPERT COMMITTEE (CDEC) FOR SPINRAZA, THE ONLY TREATMENT APPROVED FOR TREATMENT OF 5Q SPINAL MUSCULAR ATROPHY (SMA) Ottawa – December 22,…

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