Dear members of the SMA community, In response to your request for information, we would like to provide you with an update on Biogen’s SMA360 Canada Patient Support Program and…
We have completed our submission in to CADTH! Thanks to everyone’s support and heartfelt responses, we feel we have a very strong message to the drug review committee expressing the…
Cure SMA Canada is very happy to announce the approval of nusinersen/spinraza from Health Canada. We are very excited to confirm the approval for treatment for all types of SMA…
June 4, 2017 Dear members of the SMA community, In response to your request for information, we are delighted to inform you that on June 1 2017 Biogen announced that…
May 4, 2017 In response to your request for information, we would like to inform you that recently the Committee for Medicinal Products for Human Use (CHMP) of the European…
May 4, 2017 Dear members of the SMA community, In response to your request for information, we would like to provide you with an update on Biogen’s global Expanded Access…
Dear members of the SMA community, In response to your request for ongoing information, we are providing you with additional updates. The main points in this update include: • the…
Cure SMA Canada Funded Canadian Researcher Dr. Rashmi Kothar Ottawa Hospital Research Institute Biosketch: Dr. Kothary is the Deputy Scientific Director and Senior Scientist at the Ottawa Hospital Research Institute…
Biogen announces the Health Canada is reviewing Spinraza – Jan 5, 2017. For late breaking details about Spinraza, check the Cure SMA (US) research news page and the Spinraza page,…
FDA approves Spinraza (nursinersin) for treating SMA – Dec 2016. Canadian locations were part of the clinical trials. There are many more details at the Cure SMA (USA) research review…