Spinraza : Next steps
Spinraza next steps. The following diagram outlines costs and benefits.
We would like to share a very special donation from a very special family.
We would like to share a very special donation from a very special family. Chantelle and Damien Commisso recently held a toy drive in memory of their precious baby boy…
We have completed our submission in to CADTH!
We have completed our submission in to CADTH! Thanks to everyone’s support and heartfelt responses, we feel we have a very strong message to the drug review committee expressing the…
Cure SMA Canada conference update
This year Cure SMA Canada will be having a conference in conjunction with CORD ( Canadian Organization for Rare Diseases What to expect?Speakers from various drug companies, health care professionals,…
Tangerine top 20 finalists
Congratulations – Cure SMA Canada has been selected as one of the #Tangerine20 contest’s Top 20 finalists. Cure SMA Canada’s mission touched our hearts, and deeply resonated with us and…
Cure SMA conference update
Here is what Cure SMA Canada has been working on at the conference: – Met with all the key research groups/drug companies receiving in depth and up to the…
Approval of nusinersen/spinraza from Health Canada
Cure SMA Canada is very happy to announce the approval of nusinersen/spinraza from Health Canada. We are very excited to confirm the approval for treatment for all types of SMA…
European Commission (EC) granted a marketing authorization for SPINRAZA®
June 4, 2017 Dear members of the SMA community, In response to your request for information, we are delighted to inform you that on June 1 2017 Biogen announced that…
Nusinersen is the first SMA treatment recommended by CHMP for approval in the European Union
May 4, 2017 In response to your request for information, we would like to inform you that recently the Committee for Medicinal Products for Human Use (CHMP) of the European…
Biogen updates Special Access Program (SAP) through Health Canada.
May 4, 2017 Dear members of the SMA community, In response to your request for information, we would like to provide you with an update on Biogen’s global Expanded Access…