April Members update
Dear members, We at Cure SMA Canada continue to monitor, provide input and represent our SMA community as we navigate the process of approval of Biogen’s Nusinersen/Spinraza in Canada. We’d…
March Members update
March 14, 2017 Dear Cure SMA Canada Members, We at Cure SMA Canada would like you to know that we understand pressures that our families are facing in terms of…
Progress being made in Europe and Canada to obtain regulatory approval for nusinersen
Dear members of the SMA community, In response to your request for ongoing information, we are providing you with additional updates. The main points in this update include: • the…
Biogen Nusinersen application
January 24, 2017 Dear Cure SMA Canada Members, I hope you are doing well. I would like to update you on the latest information to share about Biogen’s Nusinersen application…
Update from Dr. Rashmi Kothary
Cure SMA Canada Funded Canadian Researcher Dr. Rashmi Kothar Ottawa Hospital Research Institute Biosketch: Dr. Kothary is the Deputy Scientific Director and Senior Scientist at the Ottawa Hospital Research Institute…
Biogen announces the Health Canada is reviewing Spinraza
Biogen announces the Health Canada is reviewing Spinraza – Jan 5, 2017. For late breaking details about Spinraza, check the Cure SMA (US) research news page and the Spinraza page,…
DONATE A CAR
Donate A Car Canada accepts vehicle donations for “Cure SMA Canada”. To donate a car, truck, RV, boat, motorcycle or other vehicle to the Cure SMA Canada ”, go to…
Callen’s first birthday toy Drive
CALLEN’S FIRST BIRTHDAY TOY DRIVE FROM JUNE 1ST TILL JUNE 14THThis is an online event and u can participate now until Callen’s birthday when we will close orders. Please join…
2016 research news
FDA approves Spinraza (nursinersin) for treating SMA – Dec 2016. Canadian locations were part of the clinical trials. There are many more details at the Cure SMA (USA) research review…
February 5, 2015 Project update for FSMA Canada (Cure SMA) Grant: KT1415 (Feb 1, 2014 to Jan 31, 2016) $50,000 per year
Title: The Non-SMN Mediated Benefits of The HDAC Inhibitor Trichostatin A PI: Rashmi Kothary We have just completed the first year of funding from FSMA Canada. Objective: Our goal was…