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Monthly Archives: May 2017

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Nusinersen is the first SMA treatment recommended by CHMP for approval in the European Union

Research NewsBy ebessoMay 25, 2017Leave a comment

May 4, 2017 In response to your request for information, we would like to inform you that recently the Committee for Medicinal Products for Human Use (CHMP) of the European…

Biogen updates Special Access Program (SAP) through Health Canada.

Research NewsBy ebessoMay 25, 2017Leave a comment

May 4, 2017 Dear members of the SMA community, In response to your request for information, we would like to provide you with an update on Biogen’s global Expanded Access…

April Members update

Member UpdateBy ebessoMay 25, 2017Leave a comment

Dear members, We at Cure SMA Canada continue to monitor, provide input and represent our SMA community as we navigate the process of approval of Biogen’s Nusinersen/Spinraza in Canada. We’d…

March Members update

Member UpdateBy ebessoMay 25, 2017Leave a comment

March 14, 2017 Dear Cure SMA Canada Members, We at Cure SMA Canada would like you to know that we understand pressures that our families are facing in terms of…

Progress being made in Europe and Canada to obtain regulatory approval for nusinersen

Research NewsBy ebessoMay 25, 2017Leave a comment

Dear members of the SMA community, In response to your request for ongoing information, we are providing you with additional updates. The main points in this update include: • the…

Biogen Nusinersen application

Member UpdateBy ebessoMay 25, 2017Leave a comment

January 24, 2017 Dear Cure SMA Canada Members, I hope you are doing well. I would like to update you on the latest information to share about Biogen’s Nusinersen application…

Update from Dr. Rashmi Kothary

Research NewsBy ebessoMay 15, 2017Leave a comment

Cure SMA Canada Funded Canadian Researcher Dr. Rashmi Kothar Ottawa Hospital Research Institute Biosketch: Dr. Kothary is the Deputy Scientific Director and Senior Scientist at the Ottawa Hospital Research Institute…

Biogen announces the Health Canada is reviewing Spinraza

Research NewsBy ebessoMay 15, 2017Leave a comment

Biogen announces the Health Canada is reviewing Spinraza – Jan 5, 2017. For late breaking details about Spinraza, check the Cure SMA (US) research news page and the Spinraza page,…

DONATE A CAR

FundraiserBy ebessoMay 13, 2017Leave a comment

Donate A Car Canada accepts vehicle donations for “Cure SMA Canada”. To donate a car, truck, RV, boat, motorcycle or other vehicle to the Cure SMA Canada ”, go to…

Callen’s first birthday toy Drive

FundraiserBy ebessoMay 13, 2017Leave a comment

CALLEN’S FIRST BIRTHDAY TOY DRIVE FROM JUNE 1ST TILL JUNE 14THThis is an online event and u can participate now until Callen’s birthday when we will close orders. Please join…

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