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  • Home
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Monthly Archives: May 2017

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2016 research news

Research NewsBy ebessoMay 11, 2017Leave a comment

FDA approves Spinraza (nursinersin) for treating SMA – Dec 2016. Canadian locations were part of the clinical trials. There are many more details at the Cure SMA (USA) research review…

February 5, 2015 Project update for FSMA Canada (Cure SMA) Grant: KT1415 (Feb 1, 2014 to Jan 31, 2016) $50,000 per year

Research NewsBy ebessoMay 11, 2017Leave a comment

Title: The Non-SMN Mediated Benefits of The HDAC Inhibitor Trichostatin A PI: Rashmi Kothary We have just completed the first year of funding from FSMA Canada. Objective: Our goal was…

Arginine Methylation as a Regulator of SMN activities in Motor Neurons

Research NewsBy ebessoMay 11, 2017Leave a comment

Objective: We will study and obtain more information about the role of a novel protein, called PRMT8, which is present at the surface of the cells that are most affected…

Isis Pharmaceuticals Reports Data from ISIS-SMN Rx Phase 2 Study in Infants with Spinal Muscular Atrophy 2015

Research NewsBy ebessoMay 11, 2017Leave a comment

CARLSBAD, Calif., June 11, 2015 /PRNewswire/ — Isis Pharmaceuticals, Inc. (NASDAQ: ISIS) today provided an update on its ongoing open-label Phase 2 clinical study of ISIS-SMNRx in infants with Type…

Identification and Characterization of Factors Critical in Regulating the Selective Vulnerability of Distinct Motor neuron Pools in Spinal Muscular Atrophy Models of Mice

Research NewsBy ebessoMay 11, 2017Leave a comment

Identification and Characterization of Factors Critical in Regulating the Selective Vulnerability of Distinct Motor neuron Pools in Spinal Muscular Atrophy Models of Mice 2013

Clinical trial 2013

Research NewsBy ebessoMay 11, 2017Leave a comment

This study will be recruiting shortly, and is open to qualifying Type 1 Infants. Canadian location is Toronto Hospital for Sick Children. From Cure SMA-US: ISIS Pharmaceuticals Initiates Clinical Study…

Canadian SMA Research News

Research NewsBy ebessoMay 11, 2017Leave a comment

Canadian SMA Research News2012 Cure SMA Canada is proud to have offered major support to the Canadian Neuromuscular Disease Registry in support of SMA registration. This registration will make a…

Expert Hearing Solutions in support of SMA Research

FundraiserBy ebessoMay 3, 2017Leave a comment

You may remember Nicole Kutchyera, Audiologist at our north office. Nicole left for maternity leave in July, 2016 and welcomed baby Cohen in early August. At just 8 weeks old,…

$140,000 Grant to Jocelyn Côté, PhD

Grants, Research NewsBy ebessoMay 2, 2017Leave a comment

Cure SMA Canada Awards $140,000 Grant to Joceyln Côté, PhD, University of Ottawa Cure SMA Canada has awarded a $140,000 research grant to Joceyln Côté, PhD, at The University of…

SMA Family Camp

campsBy ebessoMay 2, 2017Leave a comment

Fun….that’s the word that firstly describes SMA Family Camp. The next words would be support, connections, growth and freedom. You may wonder why freedom would be included in the description.…

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